Who am I?
My Story
"That's definitely You" - Terminator 2
Hi, So I feel we've already met before. I'm Uzor Chinukwue, a Science Fiction and Fantasy author. Friends call me Monchino. Why Monchino? They've been asking since I first told them in primary school that that's what I wanted to be called. You see as a kid I was always stuck in hospital. Rather than learning to ride a bike I had to learn how to survive with sickle cell anaemia.
So I'd come back after months away and the class would ask where I'd been and I always had some fantastical story of adventure, which entertained them but I'm sure they never believed. Never told anyone what I was going through. So this air of mystery followed me. Monchino meant I could be whatever I wanted to be through my stories.
It could mean the spectacular, a world of adventure. What I want from the worlds I bring you is something worth reading, something to make you ponder over; stories that'll make you believe again, dream again. Something Monchino.
That Idea that Takes Off. Warning! May Ruin laptop.
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Learn more about sickle cell
SELSEHCC was formerly known as STSTN and is a haemoglobinopathy collaboration led by heathcare professionals, including consultants, nurses, psychologists and others, across King’s College Hospital, Evelina Children’s Hospital and Guy’s and St Thomas’s NHS Foundation Trusts.
We work closely with other hospitals in London and South East England, including University Hospital Lewisham, Queen Elizabeth Hospital Woolwich, and Croydon University Hospital. In total we provide care for over 4000 patients within the network, which covers 10 NHS trusts. SELSEHCC is a great resource for healthcare professionals.
The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life. The Society’s aim is to support those living with sickle cell, empowering them to achieve their full potential.
First set up as a registered charity in 1979, the Sickle Cell Society has been working alongside health care professionals, parents, and people living with sickle cell to raise awareness of the disorder. The organisation has been recognised for its work. The Sickle Cell Society is a great resource for friends and family, and they’re good at fundraising.
New gene-editing drug, Casgevy, the focus of this SNL sketch. Saturday Night Live, the legendary sketch show, was quick to inform viewers of the latest miracle drug to enter the market for sickle cell anaemia. Until now there’s been no cure for the disease.
The BBC reports that regulators have approved the drug for distribution in the treatment of both sickle cell anaemia and beta thalassemia – degenerative blood conditions that mostly affect peoples of African and Asian descent. The drug uses the Crispr gene editing tool. The new drug’s expensive and hopefully will be made available for those who can’t afford it.